59

sep 4, 2017

Today, September 6, 2017 would be my mom’s 59th birthday if she were still alive.

When I think about being a mom, my own role as Giles’ mom, I think a thousand times a day what my own mama would think about how I am doing. How would she do this or that…and especially the light on her face as she would hold Giles, play with him, talk with him.

Grief doesn’t go away. You don’t move on. Sometimes I know how to hold it and sometimes I don’t.

I put Nina Simone on for Giles’ nap today. Her voice, cool and deep and full– music seems to be Giles favorite thing, the thing that fills his heart. Well, that and food. And books. And balls. And laughing. He loves it all.

Mama was the most alive person I knew. Until Giles. He is so very alive.

She is in his eyes. She is somewhere in him.

Viola Rose Moriarty would be 59 today. She was an artist. Her life was her best art. She was my mom.

From her blog, April 4, 2010:

Today I called my family in Denver to wish them a Happy Easter. We had coffee with the NYTimes and sportsreporters and Ina…the Sunday morning slow start. Ahhhh…….

And then we finally pulled on some work clothes and got started.

We worked on our list of home chores, taking care of the live things first. Toilet scrubbing and floor washing and paying bills and writing thank yous and making donations, both in things to pass on and in the checks we could write now. We prepped for the week and cleaned the fish tank and the litter box and filled bird feeders and cleaned out the gardens, watered and fed the plants, finally making lists for things that can’t be done today and how much we’ll need to fix or do them later—all the little and big maintenance things that keep a home running.

Today we “counted” the chickadees starting their nest in the little house just outside our backdoor as they do every spring, and the forsythia’s first yellow blooms. We counted the garlics and crocuses and bits of herbs and bulbs that all made it through another winter. They survived and so did we. We tested the fish tank water and put out the bird baths.

And then we had a good salad for an early dinner and went to a movie at our arthouse theatre where we are members.

I love this feeling of participating in my life, of doing it together with Jon. Of making a home.

Foundation in lovingkindness. We do the best we can for all who reside here with us and around us.

This “making a home” stuff– this is where I feel most like my mom. More even than making art. I am making a home, participating in my own life. Foundation in lovingkindness.

Happy birthday, Mama. I love you.

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4 years

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This photo of Mama was taken in April 2012, at my cousin’s Bar Mitzvah, a year before she died.

It cuts me how impossible it is that she is dead now, that she died a year after this photo was taken. Despite the bald head, or even because of it (she looks so strikingly beautiful with her bald head), she is so alive here. She was a bit weak, yes, couldn’t stay up too late at the party. But we danced. We swam in the hotel pool. We put on red lipstick.

But it also cuts me how we knew, a little bit, and maybe unconsciously, that our time was limited. I had this constant pain just above my stomach from her fist cancer diagnosis in 2007 until she died in 2013. A tiny pain, subtle and not always noticeable, a tight knot. For three months in 2010 everything I ate made me sick. I went to a doctor about it and she told me nothing was physically wrong.

It’s still a shock  most mornings, that she is not here. Sometimes she is alive in my dreams and everything is normal. In these dreams she has been sick but recovered and I feel such great relief that she is okay. Then I wake up.

Giles doesn’t get to know her except in stories. This is a huge gap, a thing he is missing and will be missing his whole life. She would have been a wonderful grandmother (Meme, as she wanted to be called), a great friend, a huge presence for him.

I’ve always said I have no regrets. Mostly this is true. But there are some living in my shadow, in the back corners of my brain.

I’m angry. I’m also sad, scared, some other feelings I don’t know how to name.

It doesn’t get better. It will never be better. It will just be life. Good and bad at the same time. Heartbreak and joy.

I don’t know what else to say. I have a lot of things to say.

 

 

 

until the last minute

From my mom’s blog:

…Right now I’m starting to see myself in some new ways:  forgetful and distractable beyond the fog I’d come to know through chemo, radiation, whole brain radiation, radiosurgery and more radiosurgery.  I’ve started to hear my husband and children say things like “Mama, you really did know about that, you just forgot”  more often than ever before. I’ve gotten lost and damaged trying to find a path I use every day….I need help in ways I didn’t think I’d ever accept. I run into things.  I have numb pain from toe to waist on one side.  My head hurts.  I’m so cold.  Then I’m hot.  I’m not allowed to roast the chiles alone anymore.  I use a coffee pot that turns itself off so I don’t burn down the house.  I make brutal decisions about time and energy.  I ask my friends to walk with me, or to sit for me in exchange for my poor company. To give me healing or massage. Mostly I ask them to either paint with me,  or leave me to paint. Often I refuse most food I don’t make. I’m spending my grant money on a sink for the studio and a bed easel so the days I can’t walk down the stairs or just can’t get out of bed, I can still work.  A woman to drive me to drawing groups.  Paint and tubes,,,adding up how much I think I can actually use over the next few months.?  Now they don’t call me a survivor, or cancer clean, or any of those things.  THey tell me I’ll always be STage 4:   Stage 4 metastatic cancer with metastesis to the brain, CNS, around most organs….The only place I don’t seem to have breast cancer is in my breasts–but that may have changed, too. Tenacity is my other name. I ask for help, and I ask for understanding.  I am compassionate to old and infirm people in an even more profound way as I bumble through the woods…

But the main thing that scares me is that my energy level is dropping.  I’m tired.  I’m tired inside and if I think about it more than a second it brings tears to my eyes.   I’m desperate inside and I cry out in my head to all the dead women painters I love so much: Lee, Alice, Joan, Georgia, Frida, and to some men painters, too, Eduard, Pierre, David, Wayne, Elmer…..oh, please, everybody help me have the strength to make great work until the last minute.  Help me work, study, think, hold my brush…set up my easel—which way do the knobs go? Righty tighty, lefty lucy. I still have this fiery desire to make my work.  Even drawing boxes to learn linear perspective feels like achieving a goal, gessoing and sanding boards feels like living the dream.  And when I put brush in paint to board I know myself again, still, more deeply…that lets me know I am still here…

And to Life, I add, please help me to choose deep time with my husband and daughters, with my family and my soul friends.  Help me make the most of what is left of my energy.  Give me my husband’s love and help me not think of what it will be to go somewhere without him driving me, without him loving me.

 I’m tired inside and if I think about it more than a second it brings tears to my eyes.   I’m desperate inside and I cry out in my head to all the dead women painters I love so much: Lee, Alice, Joan, Georgia, Frida, and to some men painters, too, Eduard, Pierre, David, Wayne, Elmer…..oh, please, everybody help me have the strength to make great work until the last minute.

Love is all there is:  loving the work and loving the ones who share my life.

I now give away things each week, wrap up projects….organize the chaos so my family won’t have to.  I write the letters my daughter asks me for her wedding and when she has a baby.  I remind my daughters and my loving husband that I am on their side—always.  I arrange to make a trip home to Denver to connect with my family and friends.  How many kisses do you want I always ask my youngest nephews and they almost always say 100.  I ask for a million.  A trillion.  I always want more.

I see myself now as a weeping woman who is walking toward the door now, not with arrogance or tenacity or attitude but stooped with humility and deep tiredness, begging for a little more love, a little more work done, a little more time……

Viola Moriarty, 14 October 2012

This was written 6 months and 4 days before she died. I didn’t know then how close we were to the end. But it’s there, in her words:

I’m tired inside and if I think about it more than a second it brings tears to my eyes. I’m desperate inside and I cry out in my head to all the dead women painters I love so much: Lee, Alice, Joan, Georgia, Frida, and to some men painters, too, Eduard, Pierre, David, Wayne, Elmer…..oh, please, everybody help me have the strength to make great work until the last minute.

Today is March 24. In 25 days it will be April 18, the four year anniversary of my mom’s death. It is four years, a marriage, and a new human life since she has been gone. I don’t understand it. And yet it’s my whole life. I live inside this fact.

Love is all there is:  loving the work and loving the ones who share my life.

I repeat this in my head. Watch my baby on the monitor as he breathes in and out, steady in his sleep. Paint, draw, write. Dance with my husband in the kitchen.

I don’t know why I’m sharing this today in particular. But here it is. Trying to make my own great work until the last minute.

art as life

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Today I was interviewed on the community radio station in North Adams for a show called Creative City. I got to talk about my art and my life, how they inspire each other, and promote my upcoming comics class (is183.org for more info and to register).

It felt really good to talk about what I do. I’m proud of my life, and it’s validating to be interviewed on a radio show and have someone besides me refer to me as an Artist. It’s important to remember that I work, and it’s good work, even if it’s not a “regular” job. It’s a “real” job and I love it.

My mom and I used to discuss our lives as artists all the time– how we balance time/money/desires and manage the business side of art. I loved talking about that stuff with her. I don’t get to talk about it that much anymore. Not the way she and I would talk about it. I’ve never found another art friend like my mom, and I don’t expect to.

I miss her.

I wish she could’ve been with me on the radio today, talking about her art life. I can’t really talk about mine without talking about hers too.

My dad and Giles listened to the show from the lobby of the station while we were broadcasting. Julia played a couple of my song recordings, one of which was the “Giles Fox” song. My dad held Giles up so he could stand on the floor in front of the radio, and he danced.

 

november, dia de los muertos

Everybody’s gone away.
They think there’s nothing left to see.
The garish colors’ flashy show is over.
Now those of us who stay
hunker down in sweet silence,
blessed emptiness among

red-orange shadblow
purple-red blueberry
copper-brown beech
gold tamarack, a few
remaining pale yellow
popple leaves,
sedge and fern in shades
from beige to darkening red
to brown to almost black,
and all this in front of, below,
among blue-green spruce and fir
and white pine,

all of it under gray skies,
chill air, all of us waiting
in the somber dank and rain,
waiting here in quiet, chill
November,
waiting for the snow.

~ The Fall Almost Nobody Sees, by David Budbill

As it gets colder, the trees get bare, Giles sees his first snow, I think about death and life and cycles. Bringing pain into joy, carrying both. You can see a lot further around here when the leaves are gone, and it’s comforting. Beautiful in an introspective kind of way. Lonely. But good lonely. Greys on greys on greys.

I miss my mom. I dress Giles in a skeleton outfit. I wear all my skeleton clothes and jewelry.  I think about how my bones are different now after pregnancy and labor– my ribcage is wider, my hipbone too, my foot bones longer and flatter. Last year Giles’ bones grew inside me. Greg and I make sugar cookies decorated like skulls and we eat too many. I make an altar in my art studio.

She walks these hills
in a long black veil

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today my mom would be 58

Today my mom would be 58.

Today my baby is 4 months old.

Today I am drinking coffee, cuddling Giles, having feelings. It’s not okay that she’s dead. It’s not okay that she isn’t here to be a grandmother to Giles (Meme, as she wanted to be called), and to help me paint and arrange my first house, to see Phoebe’s land and paint there, to make her art, dance in the kitchen, roast chiles, take walks, ride her bike, talk loud and fast, to “bricolage” her way through years and years. It’s not okay that she’s not getting older.

Giles just wailed for about an hour. Full on scream-crying and nothing I could do calmed him down. I looked him in the eyes as tears poured down his little face. I feel like wailing. I feel like scream-crying out of my broken heart.

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From my mom’s blog, vimorpainter.wordpress.com (which you should check out if you miss her, because her words are there, her voice, some little piece of herself, and you can visit it anytime):

Sketch Yourself in Words, 2007
My name is Viola Rose Moriarty. It’s not the name I was born with—except the Viola part, that’s my grandmother’s name that died long before I came into this world. The rest of my name I chose myself after a brief, failed young marriage in college. I didn’t want my husband’s name, but I had no name to go back to since my father had been absent from my life since I was six years old and my mother had remarried with a new name. I didn’t know who to be so I chose my favorite literary character, Dean Moriarty from Kerouac’s On the Road. And in a small Denver courtroom, for the reasonable price of thirty-two dollars I started to become the person I am now.
I am bilingual, an artist, a retired educator, a parent, a lover, a friend, a palm reader, a lifelong learner and a wife. I have loved my adult life, seizing the majority of days with pure abandon, humor, moxie and chutzpah.
When I was diagnosed with cancer I began to work it into the mix: the surgeries, the appointments, the emotions—all with help from my therapist, family, friends and most of all, from my husband.
People usually see the upbeat and adventurous and creative side of me. It’s only Jon who knows the skid marks and scars underneath, the billion ways I’m afraid. That I’m an enigma.
So, I did pretty well through the first wave of cancer, drafting my comic book The Adventures of My Left Breast and making paper dolls with new hospital gown designs. I took photos of everything and I saw myself doing pretty well in those pictures.
Then I went to chemotherapy. First day: Treatment okay. I sketched through it. Second day: Jittery but okay. Days three, four and five I have descended into a staticky evil fog filled hell that I can never adequately describe. Like trying to pay attention through a vibrational band of intense, angry static. Everything hurts. Reading and listening are so hard—so, so hard. I’ve never felt anything like this and I don’t feel strong enough to cope with it. It’s day six now and I’m a little better, but still unable to go to drawing tonight. I’m still unable to focus enough to get my art supplies set up and begin a painting.
I’ve got to grab onto something that will break through here—a different way to work these days. Come on, help me out Max Ernst, David Park, Alice Neel, Mr. Rauchenburg—–anybody? I pray to the dead and to the live painters to help me….help me work.
I have raised my girls and they are spectacular—they’ll be home to help me with my haircutting soon. I want them to see me able to do this; I want to be a good role model. I want them to see me work when working feels impossible.
I don’t want my daughters to ever suspect the terror of being separated from one’s own self.
I don’t want my husband to see me defeated in this way, bumbling about like a babosa instead of the sexy, arrogant, often insane woman he loves (and slightly fears).
But this is where cancer—no, not cancer, but the treatment of cancer—-has me by the breasts and by the balls, so to speak. It’s taken over the airways and it’s screaming at fever pitch. Static and black chaos are filling the room around me, slurping into and over the rims of my eyeballs and nose and around my fingernails.
There’s no escape……and I have never, ever learned how to surrender. 

Viola Moriarty, April 2007, After Chemo #1,
(From an assignment in the Moving through Breast Cancer class with Anastasia Nute)

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the women in my family get breast cancer

the women in my family 1

the women in my family 2

I know getting a mammogram doesn’t really mean I will get diagnosed with cancer. I know this. Getting mammograms regularly and doing self exams is how they would diagnose breast cancer early enough that my survival chances would be much better. And maybe I will never get cancer, that’s also a possibility.

But still.

I think I will always be waiting for that shoe to drop, in the back of my mind. Grasping on the edge of fear every time my breasts are squished between two glass plates, worrying that this mammogram might be The Mammogram. Every time I prod my breasts with my fingers in a circular pattern, dreading the possibility of A Lump.

I know that I am not guaranteed to get breast cancer.

But still.

I’m really scared that I will. That my body will betray me. That my son will sit with me at chemo, shave my head for me, make me radiation mix tapes, hear me vomit in the middle of the night and lie awake with the terrible knowledge that his mama might die. That he’ll have to live un-mothered too young.

I want to live to be really, really old, with Greg at my side reminding me where my glasses are, getting to watch our children grow up. I want to live at the beach. I want to LIVE. Live, live live. Grow to a ripe old age. Mother my children, love my husband, document and process my experiences through art, watch all the movies, eat all the popcorn, dance with my sister, howl at the moon, love it all.

birthday week

I love my birthday. A lot. Usually I spend the whole week celebrating (often to the extent of annoying those around me), doing things each day that make me happy, special things, eating my favorite treats, wearing my favorite outfits.

This year, my birthday has become something else, something even bigger. It’s the day my mom pushed me out of her body with all the pain, violence, power, joy, blood, guts, and poop of my own labor just four weeks ago. My birthday marks this day that was so intense for us both, something we did together. Being born is a big deal! It’s really hard! And amazing. The world splits open. Something begins. Something ends.

This week it’s been mostly me and Giles, our (mostly) quiet cycle of feeding, changing diapers, staring into each others’ eyes. Does he know it’s my birthday tomorrow? That I made the same strange journey into the world as he did? Tomorrow also marks four weeks since his entrance: the longest, hardest, best day of my life. It’s wrong, I think, to say “hardest,” because the day my mom died was actually the hardest day. Hard in a different way. Different kinds of pain.

The last of my birthdays that I spent with my mom was when I turned 27. My parents and I went bike riding around town and got milk shakes.

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I loved bike riding with my mom. She LOVED riding her bike so much and that joy was contagious. She’d be the leader, ringing her bell to signal if she was stopping or just to say hi. She had a “bike dance.” We’d fly around town, we the non-drivers, on our beautiful bikes feeling the breeze and feeling so cool and feeling so free.

Tomorrow Giles and I will not be bike riding. We’ll probably do the same things we do most days. He will look at me with those big, gorgeous eyes he has, I will coo at him, we’ll make faces at each other. I’ll nurse him a million times. Change a million diapers. As I mark 31 years I know that my life is hugely different now. But also I’m the same person.

On my third birthday I asked my mom, “Mama, when will I be three?”
“After your nap,” she said.

Mama, when will I be thirty-one?
After your nap. 

 

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3 years

me with guitar (to match pic of mama)mama playing guitar.jpeg

The week before my mom died, my friend Leah took the top photo of me. It was inspired by the photo underneath of my mom playing guitar on her bed when she was a teenager. I’d been wanting to recreate that photo with myself as the subject for a while, and since Leah (who is a professional photographer) was in town, we thought it was a good opportunity to finally do it.

A few days later my mom died. April 18, 2013 was the strangest, longest, and hardest day. There were things we had to do, so we did them.

Three years later, yesterday, it’s still really strange and uncomfortable, my insides felt itchy and out of place. My emotions flipped around from sad to calm to angry to cranky to trying to shut down.

Three years in the After. Baby Smokey rolling and kicking in my belly, getting ready to come out. I wonder if he will have her ears.