Ever since being pregnant, and birthing a baby, and being a mom, there’s a lot of extra hormones raging around inside my body. I cry a lot. I’ve always cried– like at the movies or on the NYC Subway. But now I cry more, and from the faintest hint of any commercial involving babies (the first time Giles successfully put Cheerios in his mouth I cried retroactively at every Cheerios commercial I’ve ever seen). When we first brought Giles home I cried every evening at 5:00 sharp. For two months.
Sometimes I am crying about more than what it appears I am crying about.
Luckily, Greg often seems to understand exactly what it is I’m really upset about. Sometimes he doesn’t know, so he asks. Sometimes he puts a bowl of cereal in front of me because he knows I am actually just hungry.
I expected to test positive, but the news still felt emotional. Knowing for sure that my mom had the gene mutation, wishing we could have found out sooner, not knowing if it would have made any difference. The idea that I may have passed this on to Giles. My future babies.
Now I can get early screenings and do all the things I need to do. If I ever get cancer it will be diagnosed as early as possible, and that’s what saves lives (not any kind of “cure”). But I will always be waiting. I’ll get tested and tested and hopefully I will always be fine. But. But. But.
Next come the appointments. A High Risk Breast Clinic and the Dana Farber Li Fraumeni Clinic. Attempting breast self-exams while full of milk and tender. Mammograms. Breast MRIs. Other screenings. I’ve filled out my family history so many times already, can’t they just send it to each other? Faxing, scanning, calling. Holding a baby and talking on the phone: his gurgles and “ba ba ba” sounds in one ear, the nurses and receptionists in the other.
I’ll be posting more comics about this soon, but just to explain briefly what this is: TP53 is a gene that helps fight cancer. Having this particular mutation that runs in my family (which is also called Li Fraumeni Syndrome) means it’s easier to get cancer. It doesn’t mean I definitely will get it, it just means I have a higher chance than the average person.
I made this comic before having the test myself, so I didn’t know if I would have it or not. Rather than leave you in suspense until I finally have time to post the next few comics, I will just tell you now that I do have the gene mutation. This means my mom had it too, but they weren’t testing for it in 2011 when she had her genetic testing. I have lots of feelings, and will get into that more later. For now, I just wanted to get the ball rolling and start posting these new comics, and maybe write a little bit too about my experiences with all the testing, etc.