march 10, 2017

dana farber 1

dana farber 2

dana farber 3

My appointment went really well, and I feel really good about the medical team I will be working with. We stayed with some of Greg’s family who live walking distance from the hospital. They watched Giles while Greg and I went to the appointment. The snow was falling so beautifully, and the day felt auspicious since it was the anniversary of Lee’s death.

I don’t have many photos of him. This is one of my favorites:

unnamed-1

It feels important to share photos of Lee. For the people who love him, so we can look at as many of his alive moments as possible. He was really here, he was a person, he wore khakis and a tie for the homecoming dance in 2003. He had a certain way of standing.

 

getting the call

tp53-2

I expected to test positive, but the news still felt emotional. Knowing for sure that my mom had the gene mutation, wishing we could have found out sooner, not knowing if it would have made any difference. The idea that I may have passed this on to Giles. My future babies.

Now I can get early screenings and do all the things I need to do. If I ever get cancer it will be diagnosed as early as possible, and that’s what saves lives (not any kind of “cure”). But I will always be waiting. I’ll get tested and tested and hopefully I will always be fine. But. But. But.

Next come the appointments. A High Risk Breast Clinic and the Dana Farber Li Fraumeni Clinic. Attempting breast self-exams while full of milk and tender. Mammograms. Breast MRIs. Other screenings. I’ve filled out my family history so many times already, can’t they just send it to each other? Faxing, scanning, calling. Holding a baby and talking on the phone: his gurgles and “ba ba ba” sounds in one ear, the nurses and receptionists in the other.

I’ll probably be fine. I am fine.

LFS mutant ninja turtles.